Friday, January 21, 2011

Qualified Good News


Is there any other kind when dealing with health (or doctor's pronouncements)?
I had my four-month MRI yesterday and saw my oncologist.  I can say for the record that what began as an hour of torture in the Sci-Fi machine has become old hat.  I found myself drifting off, looking at my reflection in the control room window via a mirror attached to my "Hannibal Lecter goes out for the day" mask, wondering if GE was consciously channeling 2001: A Space Odyssey when they designed this MRI machine.  I used to find the hour of lying immobile in a small, noisy (imagine R2D2 getting slowly crushed in the Death Star's trash compactor) metal cylinder was an unpleasant experience that required visualizations (trying to recall the run in Hance in every detail) to endure but honestly, it doesn't seem like a very big deal anymore.  

Monday, January 17, 2011

A good laugh and a long sleep



There is an Irish proverb that says,"A good laugh and a long sleep are the best cures in the doctor's bag."  I have been laughing plenty but sleep has been hard to come by.  One of the most effective medications at helping to reduce brain swelling is the steroid decadron.  It seems that all brain cancer survivors spend some amount of time on decadron.  Unfortunately, decadron comes with a litany of unpleasant side effects - anxiety, irritability, elevated blood pressure, weight gain, and worst of all in my case, insomnia.

Wednesday, January 5, 2011

The Osher Center for Integrative Medicine


One of the most amazing aspects of receiving treatment at UCSF is that not only do we have some of the best oncologists in the world, we have the possibility of getting holistic, clinical care as part of the same medical system.  Rather than having to seek out treatments outside of the usual health care systems, UCSF offers integrative medicine under the umbrella of the rest of your care.  This also means that the practitioners can access your medical history and contact your other doctors as colleagues.  A few months ago, I wouldn't have appreciated what a profoundly revolutionary idea this is.

Monday, January 3, 2011

Treatment



We discussed our treatment options with our doctor - we could simply monitor the tumor with regular MRIs and hope that it is in fact a very slow growing cancer and discuss treatment when the tumor showed change.  It is a strange thought that I may have been carrying this cancer in my brain for a very long time without showing any ill effects.  We will never know this.  The doctor thought this wasn't the best option in our case and this made sense to us given that I had started to show some symptoms.

Diagnosis



Pre-surgery haircut - I only needed a small patch shaved
The day after my MRI, I saw a GP in Canberra who sent me to see a neurologist. While ruling out a diagnosis strictly from a scan, it appeared that my "migraines" were being caused by a brain tumor.
After talking with the doctor, we decided to return to the U.S., specifically to the University of California, San Francisco Medical Center (UCSF), for further evaluation and treatment.
The next few days were a bit of a blur. Colleagues at the Embassy could not have been more helpful and supportive and by some minor miracle, thirty-six hours later, we were boarding our San Francisco bound flight in Sydney having spent about an hour packing our bags.

When and how did this all start?




We began noticing that something was up around the time we returned to Washington for training after our posting to Yekaterinburg, Russia in March of 2010. I felt exhausted and could never catch up and feel rested. Given the circumstances - a mid-winter move from the edge of Siberia to a demanding training schedule at the Foreign Service Institute (FSI) in Arlington - it didn't seem too unusual and we just plowed ahead.